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Autumn, Age 9

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Autumn

Hi my name is Autumn.  I am 9 years old and I have Juvenile Polyarticular Juvenile Rheumatoid Arthritis. I was diagnosed when I was 7 years old, and it took many trips to the pediatrician for them to realize I was not having growing pains. I often had swollen knee caps and severe pain that caused me not to be able to walk. My hips often lost movement and would not let me walk either. When I was in first grade I fractured my hip and that's when the doctors decided I needed to see an Arthritis specialist.  After a year of blood tests, cat scans and MRIs they finally found a positive blood test for Arthritis. It has been a struggle for me as I seem to have many flare-ups in my hips and knees. I often miss school and my life of play has not been so much fun. I have been on many different medications like Naproxen, and Hydroxychloroquine or as I call it, "The Awful Tasting medication" and now I am on Prednisone and Methotrexate. It is now the last resort to avoiding   shots in my knees.

Sometimes I feel very sad and very happy all at the same time. When I have flare-ups I can’t stop crying and it hurts a lot. I have crutches and a walker for when my hips stop working. I don't get much sleep either. I saw a therapist for a while and he was very helpful and taught me ways to control my arthritis with exercise. It has helped but not totally.  Just before Christmas I had to see my specialist because I started having severe pain in my chest. My specialist told me I had a flare-up and my arthritis spread to my lungs. This did not make me too happy; in fact I was mad.  I have had every symptom of Lupus except for the rash but my last two flare-ups, I did have a rash and now he thinks I may have Lupus. WHATEVER THAT MEANS! There are good days, however when I am not having flare-ups and trying to get used to new medications. I love to laugh, play and take care of my sisters. I do really good in school and try my best to not let my arthritis stop me. I made RA bracelets with my grandma for my friends at school and they all wear theirs to support me and my battle. Someday I would like to go to Albuquerque for the Arthritis Walk, and I hope it will be this year. I don't know any other kids with JRA, and I hope to meet some one day so I can know someone else that hurts like me. This is my story, and this is me!     


Autumn

Hi my name is Autumn.  I am 9 years old and I have Juvenile Polyarticular Juvenile Rheumatoid Arthritis. I was diagnosed when I was 7 years old, and it took many trips to the pediatrician for them to realize I was not having growing pains. I often had swollen knee caps and severe pain that caused me not to be able to walk. My hips often lost movement and would not let me walk either. When I was in first grade I fractured my hip and that's when the doctors decided I needed to see an Arthritis specialist.  After a year of blood tests, cat scans and MRIs they finally found a positive blood test for Arthritis. It has been a struggle for me as I seem to have many flare-ups in my hips and knees. I often miss school and my life of play has not been so much fun. I have been on many different medications like Naproxen, and Hydroxychloroquine or as I call it, "The Awful Tasting medication" and now I am on Prednisone and Methotrexate. It is now the last resort to avoiding   shots in my knees.

Sometimes I feel very sad and very happy all at the same time. When I have flare-ups I can’t stop crying and it hurts a lot. I have crutches and a walker for when my hips stop working. I don't get much sleep either. I saw a therapist for a while and he was very helpful and taught me ways to control my arthritis with exercise. It has helped but not totally.  Just before Christmas I had to see my specialist because I started having severe pain in my chest. My specialist told me I had a flare-up and my arthritis spread to my lungs. This did not make me too happy; in fact I was mad.  I have had every symptom of Lupus except for the rash but my last two flare-ups, I did have a rash and now he thinks I may have Lupus. WHATEVER THAT MEANS! There are good days, however when I am not having flare-ups and trying to get used to new medications. I love to laugh, play and take care of my sisters. I do really good in school and try my best to not let my arthritis stop me. I made RA bracelets with my grandma for my friends at school and they all wear theirs to support me and my battle. Someday I would like to go to Albuquerque for the Arthritis Walk, and I hope it will be this year. I don't know any other kids with JRA, and I hope to meet some one day so I can know someone else that hurts like me. This is my story, and this is me!     

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