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Carson, Age 4

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Carson

My son, Carson, started complaining his hands were hurting. We had his doctor look at them, and she told us if they start looking swollen or we see any redness to bring him back in. 

About 3 months later we noticed his wrists were so swollen. He had X-rays and lots of labs, one of which the doctor told us would tell us if he had rheumatoid arthritis. Those labs came back normal, which left us so frustrated. We were even set to go see a pediatric orthopedic specialist by a doctor other than our own pediatrician. My son's doctor looked at his wrists as soon as she was available and said she was pretty sure it was rheumatoid.

Talk about a roller-coaster of emotions! She said that test results in kids are not near as accurate as in adults when testing for autoimmune diseases. She set us up with an appointment with a pediatric rheumatologist. This specialist was the only one in the state, so unfortunately we were going to have to wait 6 months before we could even get into see him. Luckily there was a cancellation and they got my son in fairly soon after being very persistent.

This doctor was amazing! He diagnosed my son with polyarticular juvenile idiopathic arthritis, meaning he has arthritis in 5 or more joints. They are taking an aggressive treatment plan to hopefully bring all the swelling down, and make it so he can use his wrists/ hands like a normal 4 year old. 

He has a long road ahead of him, but it truly amazes me how resilient kids are. I admire how he takes everything with a grain of salt. He is now on 3 different medicines and 2 vitamins. Some of his medicines may cause some nasty side effects, but as we have been told many times we outweigh the benefits to the risks. That is still hard for a mom to hear. In a couple of weeks they are going to do injections in all his joints with arthritis, which they will put him under for. I pray that we can get this in remission with medicine and that we can then decrease his medicines. It's so hard to see your child go through this and to see all the medicine he has to take and labs we have to do on a regular basis to make sure his body is handling the medicine OK. 

As a mom I hope that he can experience all those activities that kids get to experience without his having limitation because of his arthritis. He gives his momma great strength when it is supposed to be the other way around. He is such an amazing little boy!


Carson

My son, Carson, started complaining his hands were hurting. We had his doctor look at them, and she told us if they start looking swollen or we see any redness to bring him back in. 

About 3 months later we noticed his wrists were so swollen. He had X-rays and lots of labs, one of which the doctor told us would tell us if he had rheumatoid arthritis. Those labs came back normal, which left us so frustrated. We were even set to go see a pediatric orthopedic specialist by a doctor other than our own pediatrician. My son's doctor looked at his wrists as soon as she was available and said she was pretty sure it was rheumatoid.

Talk about a roller-coaster of emotions! She said that test results in kids are not near as accurate as in adults when testing for autoimmune diseases. She set us up with an appointment with a pediatric rheumatologist. This specialist was the only one in the state, so unfortunately we were going to have to wait 6 months before we could even get into see him. Luckily there was a cancellation and they got my son in fairly soon after being very persistent.

This doctor was amazing! He diagnosed my son with polyarticular juvenile idiopathic arthritis, meaning he has arthritis in 5 or more joints. They are taking an aggressive treatment plan to hopefully bring all the swelling down, and make it so he can use his wrists/ hands like a normal 4 year old. 

He has a long road ahead of him, but it truly amazes me how resilient kids are. I admire how he takes everything with a grain of salt. He is now on 3 different medicines and 2 vitamins. Some of his medicines may cause some nasty side effects, but as we have been told many times we outweigh the benefits to the risks. That is still hard for a mom to hear. In a couple of weeks they are going to do injections in all his joints with arthritis, which they will put him under for. I pray that we can get this in remission with medicine and that we can then decrease his medicines. It's so hard to see your child go through this and to see all the medicine he has to take and labs we have to do on a regular basis to make sure his body is handling the medicine OK. 

As a mom I hope that he can experience all those activities that kids get to experience without his having limitation because of his arthritis. He gives his momma great strength when it is supposed to be the other way around. He is such an amazing little boy!

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