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Ella W., Age 6

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Ella W.

As told by her mom:
Ella has always been a happy child. She has an absolute explosive personality. She began running with a gallop when she was three years old. I thought it was the cutest thing ever! 

Right after her fourth birthday, I had to question why she ran that way. Ella climbed in my lap twice in the middle of playtime with a friend and said that her leg hurt. I called her pediatrician, which referred us to a bone and joint specialist, that referred us to a pediatric bone and joint specialist. The blood work they administered showed that she has JRA. 

Her left knee was extremely inflamed and her right wrist was also affected. Our pediatric rheumatologist tried many medications to reduce the inflammation. Nothing was working and to add insult to injury, her stomach pain from the meds overpowered the arthritis pain. She had a severe reaction to a particular drug that caused her to stutter to the point that she didn't want to talk any more. 

At this point, she couldn't climb, run, and play like the other kids. She also was getting behind in school because we had to focus on managing pain instead of learning ABC's. Our rheumatologist had exhausted all options that he could do, so he referred us to another rheumatologist. He injected steroids directly into the joints affected. 

She has been in remission for 1 1/2 years from the injections. In August, the pain started again. We are consulting with doctors again to see what treatment option will be best for her. For over a year she has been the happiest, most active child! 

Research so badly needs to be funded for the cure for this disease. My Ella and children like her are entirely too young to have to suffer this kind of pain. I thank God for the relief that she has gotten and hope the doctors continue to find new ways to treat arthritis without all of the harmful side effects. Ella actually got to participate in Jingle Bell Run this year. She not only walked the mile, she ran at the mid-point.

 


Ella W.

As told by her mom:
Ella has always been a happy child. She has an absolute explosive personality. She began running with a gallop when she was three years old. I thought it was the cutest thing ever! 

Right after her fourth birthday, I had to question why she ran that way. Ella climbed in my lap twice in the middle of playtime with a friend and said that her leg hurt. I called her pediatrician, which referred us to a bone and joint specialist, that referred us to a pediatric bone and joint specialist. The blood work they administered showed that she has JRA. 

Her left knee was extremely inflamed and her right wrist was also affected. Our pediatric rheumatologist tried many medications to reduce the inflammation. Nothing was working and to add insult to injury, her stomach pain from the meds overpowered the arthritis pain. She had a severe reaction to a particular drug that caused her to stutter to the point that she didn't want to talk any more. 

At this point, she couldn't climb, run, and play like the other kids. She also was getting behind in school because we had to focus on managing pain instead of learning ABC's. Our rheumatologist had exhausted all options that he could do, so he referred us to another rheumatologist. He injected steroids directly into the joints affected. 

She has been in remission for 1 1/2 years from the injections. In August, the pain started again. We are consulting with doctors again to see what treatment option will be best for her. For over a year she has been the happiest, most active child! 

Research so badly needs to be funded for the cure for this disease. My Ella and children like her are entirely too young to have to suffer this kind of pain. I thank God for the relief that she has gotten and hope the doctors continue to find new ways to treat arthritis without all of the harmful side effects. Ella actually got to participate in Jingle Bell Run this year. She not only walked the mile, she ran at the mid-point.

 

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