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Kiana S., Age 10

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Kiana S.

Hi! My name is Kiana and I was 4 years old when the doctors told my mom I had JRA. I don't remember the earlier years of my disease, but my mom says I was about 2 years old and I just stopped walking. It was just too painful to move my legs. She rushed me to the hospital where they did numerous tests on me, from blood work to X-rays, but all they could find is that I was anemic and they began treating me for anemia. 

The pain went away eventually, but only to return again. This time it was accompanied with a fever, but no known causes were all they would tell my mom. My mom says this went on and off for about 2 years until my fever spiked really high and I was unable to move. I was in lots of pain and my mom rushed me to the hospital where I was admitted for a few days. They ran a lot of tests on me only to find out I had juvenile rheumatoid arthritis. 

I can remember at about when I was 6 years old and the nurse would come to my house and teach my mom how to give a an injection which I would be receiving weekly for the rest of my life. That injection wasn't too bad but it wasn't helping me either; I was still in lots of pain and very stiff. 

Throughout those next three years I was constantly in pain and taken off one medicine and placed on another. Many of the medicines suppress my immune system so I stay sick, but I do manage to have fun also. 

I am now 10 years old and can only remember the last few years of my sickness; I take 3 pills two times a day and go to the infusion center monthly for an injection, but my mom, grandma and my brothers have had to suffer the entire time with me. I try to make the best of things; I go to church and many people pray for me and my mom and I pray too that God will heal me and keep my mom strong. 

Sometimes I'm sad because the pain and stiffness is so bad I can't go to school so I get behind. I have a great school and teachers because they understand I want to be there with the other kids but it just too painful for me, so they talk with my mother so I can get all my missed work. Sometimes my mom takes me to school late because the stiffness and pain doesn't last the whole day and she knows I like to be in school with my friends. I

 love to read, play with my dolls; I also like to skate and bowl but I can't do it too often because the pain and stiffness afterward is too much for me. I know there is no cure but me and my mom pray that one day the doctors can find a cure so when I grow up I can be like other kids and don't have to go to the doctor all the time.


Kiana S.

Hi! My name is Kiana and I was 4 years old when the doctors told my mom I had JRA. I don't remember the earlier years of my disease, but my mom says I was about 2 years old and I just stopped walking. It was just too painful to move my legs. She rushed me to the hospital where they did numerous tests on me, from blood work to X-rays, but all they could find is that I was anemic and they began treating me for anemia. 

The pain went away eventually, but only to return again. This time it was accompanied with a fever, but no known causes were all they would tell my mom. My mom says this went on and off for about 2 years until my fever spiked really high and I was unable to move. I was in lots of pain and my mom rushed me to the hospital where I was admitted for a few days. They ran a lot of tests on me only to find out I had juvenile rheumatoid arthritis. 

I can remember at about when I was 6 years old and the nurse would come to my house and teach my mom how to give a an injection which I would be receiving weekly for the rest of my life. That injection wasn't too bad but it wasn't helping me either; I was still in lots of pain and very stiff. 

Throughout those next three years I was constantly in pain and taken off one medicine and placed on another. Many of the medicines suppress my immune system so I stay sick, but I do manage to have fun also. 

I am now 10 years old and can only remember the last few years of my sickness; I take 3 pills two times a day and go to the infusion center monthly for an injection, but my mom, grandma and my brothers have had to suffer the entire time with me. I try to make the best of things; I go to church and many people pray for me and my mom and I pray too that God will heal me and keep my mom strong. 

Sometimes I'm sad because the pain and stiffness is so bad I can't go to school so I get behind. I have a great school and teachers because they understand I want to be there with the other kids but it just too painful for me, so they talk with my mother so I can get all my missed work. Sometimes my mom takes me to school late because the stiffness and pain doesn't last the whole day and she knows I like to be in school with my friends. I

 love to read, play with my dolls; I also like to skate and bowl but I can't do it too often because the pain and stiffness afterward is too much for me. I know there is no cure but me and my mom pray that one day the doctors can find a cure so when I grow up I can be like other kids and don't have to go to the doctor all the time.

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