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Malone, Age 22 mos.

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Malone

Malone, or rather "Emmy," as we call her, has just been recently diagnosed with polyarticular JRA, at 22 months. 

You would NEVER be able to tell by looking at or interacting with this sweet little girl that she's in pain or that anything is "wrong" with her. That is until you see her walking with a limp and then look down at her right knee, which is often mistaken for a grapefruit due to the inflammation. 

Emmy woke up about 4 weeks ago and refused to walk, screamed out, which is rare for her, and said "Mommy help! Help Emmy, Mommy. Up!" as she reached those little arms out for me to carry her. I cannot even tell you how heart wrenching it is to hear your child, your "baby," cry out like that, or see her go from walking, dancing, and running, to limping and holding onto furniture as a crutch when her right knee has finally stretched out after waking up or being sedentary. 

Emmy had a fall at 6 months old that resulted in a fracture of her right tibia and was in a short cast for 5 weeks. She had just started to stand and cruise along our furniture right at that time and used that cast to its fullest extent. I have been blaming her ridiculously cute waddle and sashaying hips run on the timing of the fracture and the cast. I suspected this knee swelling was somehow oddly related. 

Ready to play the telephone game? Here goes: We started out at the ortho who did the cast, who took an X-ray and stated that the problem isn't her right knee, but it is her right hip – and they don't touch toddlers’ hips – then were given a referral. We then called the referred pediatric ortho's office that, after giving the history and situation placed me on hold, came back and stated she may have a bone infection so I needed to take Emmy for a limb lab workup before they would see her. However, we would need a referral from our pediatrician for labs. 

Luckily our amazing pediatrician was able to squeeze us in the same day and after running her own lab found Emmy's sed rate to be high and was certain it was her right knee, not the hip. She sent us immediately to the Children's Hospital in case an MRI was needed and 5 hours later, the hospital's findings were "Toxic Synovitis" and a referral to the pediatric ortho merely because her sed rates were still "elevated." 

We then got in to see the pediatric ortho who took X-rays of the right knee and pelvis, and gave us several possible diagnoses, but wanted to get more labs done. Three days later the lab results came in and we were referred then to the pediatric rheumatologist who is booked solid for 2 months. I'll just say it pays to be extremely nice, and we were seen within 5 days on a cancellation.  

After an hour-long exam, we were given the news that several of her fingers, both wrists, left elbow, right knee and both ankles were inflamed, given the diagnosis, and more labs done. Talk about feeling like the worst mom in the world for not noticing until the limp She is starting the naproxen, folic acid, and methotrexate injections. Wish this baby and Guilt Ridden Mommy luck!


Malone

Malone, or rather "Emmy," as we call her, has just been recently diagnosed with polyarticular JRA, at 22 months. 

You would NEVER be able to tell by looking at or interacting with this sweet little girl that she's in pain or that anything is "wrong" with her. That is until you see her walking with a limp and then look down at her right knee, which is often mistaken for a grapefruit due to the inflammation. 

Emmy woke up about 4 weeks ago and refused to walk, screamed out, which is rare for her, and said "Mommy help! Help Emmy, Mommy. Up!" as she reached those little arms out for me to carry her. I cannot even tell you how heart wrenching it is to hear your child, your "baby," cry out like that, or see her go from walking, dancing, and running, to limping and holding onto furniture as a crutch when her right knee has finally stretched out after waking up or being sedentary. 

Emmy had a fall at 6 months old that resulted in a fracture of her right tibia and was in a short cast for 5 weeks. She had just started to stand and cruise along our furniture right at that time and used that cast to its fullest extent. I have been blaming her ridiculously cute waddle and sashaying hips run on the timing of the fracture and the cast. I suspected this knee swelling was somehow oddly related. 

Ready to play the telephone game? Here goes: We started out at the ortho who did the cast, who took an X-ray and stated that the problem isn't her right knee, but it is her right hip – and they don't touch toddlers’ hips – then were given a referral. We then called the referred pediatric ortho's office that, after giving the history and situation placed me on hold, came back and stated she may have a bone infection so I needed to take Emmy for a limb lab workup before they would see her. However, we would need a referral from our pediatrician for labs. 

Luckily our amazing pediatrician was able to squeeze us in the same day and after running her own lab found Emmy's sed rate to be high and was certain it was her right knee, not the hip. She sent us immediately to the Children's Hospital in case an MRI was needed and 5 hours later, the hospital's findings were "Toxic Synovitis" and a referral to the pediatric ortho merely because her sed rates were still "elevated." 

We then got in to see the pediatric ortho who took X-rays of the right knee and pelvis, and gave us several possible diagnoses, but wanted to get more labs done. Three days later the lab results came in and we were referred then to the pediatric rheumatologist who is booked solid for 2 months. I'll just say it pays to be extremely nice, and we were seen within 5 days on a cancellation.  

After an hour-long exam, we were given the news that several of her fingers, both wrists, left elbow, right knee and both ankles were inflamed, given the diagnosis, and more labs done. Talk about feeling like the worst mom in the world for not noticing until the limp She is starting the naproxen, folic acid, and methotrexate injections. Wish this baby and Guilt Ridden Mommy luck!

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