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Sam B., Age 11

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Sam B.

When I was born, the doctors looked at my feet and told my parents that they were really flat and the doctor didn't know what was wrong. Then I went to a hospital and they thought I had Crohn’s disease. They took a lot of blood tests and found out that I had JRA. 

I was too young to know and they put me on naproxen. Then it started getting worse and worse so they put me on methotrexate, which is a drug that turns your immune system off. I was taking methotrexate for a long time. When I was 9 they put me on another drug which was a steroid. I can't remember what the name was but it was supposed to help me with the pain

When I was 10 the arthritis was so bad I couldn't get up for school in the morning. I had skipped many days of school and it was so bad I slept on the couch most of my days. I went to the hospital and they told me that my methotrexate isn't strong enough so they are going to put me on a shot. So six months ago I started Enbrel, which is a shot. 

The doctors told me I am in remission and that it is going away. Then one month later they told me that it is getting worse. That's when they started me on my shot. I am now in remission again but I don't think it is going to last because they got it wrong. I don't tell my friends because I think that they are going to be mean to me and tease me. Only my family and one girl knows about the whole thing. 

I am 11, a male with rheumatoid arthritis, and that is my story.

 


Sam B.

When I was born, the doctors looked at my feet and told my parents that they were really flat and the doctor didn't know what was wrong. Then I went to a hospital and they thought I had Crohn’s disease. They took a lot of blood tests and found out that I had JRA. 

I was too young to know and they put me on naproxen. Then it started getting worse and worse so they put me on methotrexate, which is a drug that turns your immune system off. I was taking methotrexate for a long time. When I was 9 they put me on another drug which was a steroid. I can't remember what the name was but it was supposed to help me with the pain

When I was 10 the arthritis was so bad I couldn't get up for school in the morning. I had skipped many days of school and it was so bad I slept on the couch most of my days. I went to the hospital and they told me that my methotrexate isn't strong enough so they are going to put me on a shot. So six months ago I started Enbrel, which is a shot. 

The doctors told me I am in remission and that it is going away. Then one month later they told me that it is getting worse. That's when they started me on my shot. I am now in remission again but I don't think it is going to last because they got it wrong. I don't tell my friends because I think that they are going to be mean to me and tease me. Only my family and one girl knows about the whole thing. 

I am 11, a male with rheumatoid arthritis, and that is my story.

 

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