Living with a chronic illness like systemic juvenile idiopathic arthritis (SJIA) is challenging for anyone, but especially for children. It can be hard for kids to understand why they feel sick, have to take medications, and can't always keep up with their friends and siblings. Participating in social activities and even going to school can be difficult, and older kids often struggle with self-esteem. Parents can help their child navigate the challenges of life with SJIA by fostering independence and resilience, as well as providing support and understanding.
Here are some important ways you can help your child build strength, independence, and self-reliance while living with SJIA. READ MORE
School may present special challenges for kids with SJIA. Solutions for these challenges can range from simple fixes, such as pencils that are easier to grip and modified assignments, to detailed accommodation plans, such as a 504 Plan or Individualized Education Plan. READ MORE
A diagnosis of SJIA can affect the whole family. Shifting roles, new routines and responsibilities, and added financial and emotional stress can all take a toll. As a caregiver, understanding your role and how to cope is key. READ MORE
Regular doctor visits are an essential part of ongoing care for SJIA. Children with SJIA need regular checkups to monitor their response to medications, manage side effects or disease complications, and ensure they receive the psychological and social support they need. READ MORE
Record your child’s SJIA symptoms to share with his or her physician. Download the PDF